It is hard to believe that another week has passed and that it is time to catch you up on it!
This week, the baclofen decrease is now 60% less than the original dose being delivered via the pump each day. That means in four more decreases, I will be receiving no intrathecal baclofen and can schedule surgery shortly afterwards to have it removed.
The remaining 40% has translated into more mobility issues using the cane alone.
Since overusing my cane Wednesday as the decrease was taking effect, I have been resting my arm, wrist and hand as much as possible to rule that out as the problem.
The clonus symptoms are also worse in both legs and the stability of my standing and taking steps seems to require a bit more focus and concentration. I am still doing it, slowly and surely.
I can still drive and amble around the house, and am still clear that this decision is the better one for my body right now.
The themes for my week in the blogosphere revolved around the power of choice with a little hint at keeping focused on the bigger picture.
You may have noticed that when I am in need of a pep talk or a reminder of something, it generally ends up posted on my blog.
In the past week, I have needed to remind myself about the choices I always have in dealing with these changes.
I also needed to take a minute to remember that my motivation for getting up each day is to be the change. Quite frankly, I often think this is why I breathe air.
No part of that has to change because of how I logistically go from place to place. It doesn’t change because of anything really—at least it hasn’t so far, even though I thought it might. This is the bigger picture that I find helpful to remember when I begin to get myself freaked out about the losses.
Friday’s post about finding my dogs on a Google search was fun, and writing it was a centering tool to ground me in gratitude. My dogs represent so much to me and their search-ability would not be possible without my wonderful friends in this life. So, by extension, it was also an expression of gratitude for them.
I had a good week.
Did you? Do you feel like you are with me on this journey? Are there details or aspects of what I am doing to cope that you are interesting in hearing about that I haven’t yet shared with you? Anything I am sharing you would rather I not share?
- Dogs, Babies and Baclofen (thetawny.wordpress.com)
- Sweet Sum-up Sunday #5 (thetawny.wordpress.com)
- Seriously?! I forgot?! (thetawny.wordpress.com)
- 35%, Clocks and Docs (thetawny.wordpress.com)
- Summing it up Sunday #2 (thetawny.wordpress.com)
- From Fascination to Freaking Out (thetawny.wordpress.com)
- Always have a spare (thetawny.wordpress.com)
- Climbing the Toilet Paper Tower (thetawny.wordpress.com)